Exploring bereaved children’s experiences of the death of a close relative and the ways they wish to be supported: an emancipatory repeated focus group study

There is a lack of research considering childhood bereavement and education in the United Kingdom (UK), despite it being estimated that one in 29 children will be bereaved of a parent or sibling before their 16th birthday.

The aim of this study was to explore the experiences of young people who were bereaved of a close relative during childhood, specifically a parent or grandparent.

The study aimed to gain an understanding of bereaved children's perspectives, in a UK specific context, considering the cultural context and attitudes towards death.

It hoped to give voice to the ideas and opinions expressed by the participants about what is supportive to them in the aftermath of bereavement, particularly within a school context.

The study consisted of two focus groups of young people (aged 13-21) who were bereaved as children; they were interviewed three to four times about their experiences within the context of school, home-life and socially.

These areas were identified by the participants in a participatory, mind-mapping session before the project commenced.

Data was analysed using Reflective Thematic Analysis (RTA). Analysis revealed one umbrella theme of 'battles and conflict' and nine major themes relating to bereaved children's experiences, including: 'impact at school'; 'experiences of support'; 'desire to be normal'; 'social challenges'; 'grieving'; 'complexity of grief'; 'impact on home life'; 'post-traumatic growth' and 'hopes for future support'.

The research showed that young people had varied experiences of returning to school and receiving support in the aftermath of bereavement.

The young people felt adults misunderstood: the longevity of grief; the intersectional nature of the ways grief impacts all areas of their life; and the long-term nature of the support they require as their grief grows with them.

The findings allow consideration to be made on how to best provide bereavement support for young people.

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